As I start to compose this blog post, it is a little more
than 24 hours since the conclusion of yesterday’s Brain Tumour Debate at
Parliament.

The debate was tabled due to a successful e-petition created
by Maria Lester, whose brother Stephen Realf lost his battle with a Brain
Tumour at the age of 26 after being diagnosed at 19.

When Cian was diagnosed towards the end of 2015 the petition
was already gaining traction. Although
Cian’s primary tumour was attached to his spine; this was unusual for this
cancer type which almost always targets the brain. Plus, Cian’s MRI scan had shown that seeds of
the cancer had impregnated his brain.
Therefore when we were educated of the unfavourable outcomes associated
with a brain tumour diagnosis, and the lack of clinical trials and research in
this area, it was clear that we should add our voice to this campaign.

Even though it is unlikely that any positive action
resulting from a change in Government policy would benefit Cian, I felt
motivated that other children should not have to suffer the same fate.

Once the petition had closed, I then felt compelled to
contact my MP in order to secure a Parliamentary debate; and once the date had
been set I had to lobby once more to ensure that Cian’s situation could be
highlighted.

Although my constituency MP could not act on behalf of Cian,
due to him standing down as an MP to pursue a campaign to become a Welsh
Assembly Member, he had secured the services of Nick Smith, MP for Blaenau
Gwent to represent him.

I asked Nick to focus on how a cancer diagnosis to a school
child can impact small communities, especially when it exposes the horrors of
cancer to the friends of Cian. But also
how positive community support can be.

When I arrived at Parliament it was evident that this was a
popular debate, and my first priority was to secure a place in the public
gallery; which I managed to do. It would
not have been ideal to travel to London and have to watch the debate via a TV
screen in an adjoining room. Fortunately
the trip only cost me less than £20 thanks to very reasonable coach prices and
hotel reward points.

When we were escorted into the Grand Committee Room (where
the debate was taking place) it was already quite full with MPs, and there was
standing room only in terms of the public gallery.

It was mentioned on a number of occasions during the
afternoon that this was one of the best attended debates that Parliament had
seen within that room in recent times.
That is extremely encouraging to gauge how much support there was for
this cause.

Sir Edward Leigh who chaired the first part of the debate
even had to point out that there would be a time limit of 4 minutes allocated
to each MP who wished to speak to ensure that everyone gets a say.

The debate was opened by Helen Jones, MP for Warrington
North and chair of the Petitions Committee, who delivered an extremely
impactive speech clearly outlining the issues and recommendations that the
committee had identified in their report.

I would encourage everyone to watch and listen to her speech
(or read) via the links at the end of this blog post.

The MP speeches that followed were factual and impassioned,
mostly from a position of personal experience or encounters with constituents
who had been affected by brain tumours.

I am incredibly grateful to Nick Smith for his contribution.

There were incredible statistics that demonstrated that
funding for brain tumour research was clearly inadequate, and that lives were
being lost and careers were being blighted as a result.

Only 1% of Government funding for cancer is allocated to
Brain Tumours even though it is the biggest cancer killer to those under 40;
and while other cancer survival rates had increased by 50% in recent years,
Brain Tumour rates had only improved by 7% over the same period.

I am glad that I made the decision to attend the debate, and
I sincerely hope that momentum gathers pace to ensure that after the words,
action swiftly follows.

LINKS

Link to the original petition and associated documents

Link to the debate footage

Link to the Hansard text of the debate

Link to the WalesOnline article